Cancer : patients testify in a movie

phodopus

Published the 04.10.2017 at 16.25

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Keywords :

traitementobservancecancer

The new oral treatments have transformed the care of patients with cancer. Their mode of administration makes it possible for treatment taken at home and limit the number of visits to the hospital for consultations. The benefits on the daily and the quality of life for patients are considerable. Advantage and comfort are not entirely devoid of a catch : the observance more or less perfect of the treatment. In effect, patients are left alone at home to manage their medicines for several months or even several years. Outside the walls of the hospital, each risk to do what he wants… and not to follow to the letter the order. For very good reasons.

Let loose in the nature

“Why treat it ? If one does not love himself a little bit, it may not be cured. Finally, who owns my life ? “request a sociologist in public health. “I was observante from the beginning (…), I said to myself that if I had one chance that there is something going on that is positive, this would be it. It really is personal-dependent, it depends on the experience, ” says a woman with a rare form of leukemia. “All of a sudden you’re released into nature. And like, you were told that everything was going well, you go home and you say to yourself : after all, I’m doing well, the boxes I’ll put them aside and we will see, ” said S., who suffers from a digestive cancer for several years.

The testimonials which follow and are not alike in this documentary wants to break the taboo of non-compliance in oncology. There are as many reasons for poor adherence to the oral treatment of patients : some tolerate more adverse effects, such as hair loss. For others the inability to consider a maternity is unbearable because ” stay alive without project life loses all its interest “.

Discomfort

What emerges also from this “52 minutes” directed by Novartis Oncology and ten partner associations, it is the discomfort of all, the carers as the cared for, in the face of what is undeniably a step forward. For the oncologist, ” this has completely revolutionized the treatment of certain diseases (…) to extend their survival and their lives, trying if possible to meet their quality of life.” The paradox, therefore, is that the better is not necessarily the ideal : the patient may suffer, such as the entrust one of them. “The failure to observe therapeutic it is a great suffering. It is important to share as quickly as possible, to be able to get out, as quickly as possible. From the moment we start discussing it, you begin to find solutions. “This film, which for the first time deals with this matter, suggests several tracks to accompany those patients who will develop in the years to come. Freeing the voices of both patients as doctors is already a first step.

“A life under orders,” which is available on the YouTube page of Novartis France and on the websites of patient associations and partners.

The partner associations :

APTED (the Association of Patients with Endocrine Tumors Various) http://www.apted.fr

EUROPA DONNA France http://www.europadonna.fr

CCM (Knowing and Combating Myelodysplasia) http://www.myelodysplasies.org

SPARK http://www.etincelle.asso.fr

FRANCE LYMPHOMA HOPE http://www.francelymphomeespoir.fr

INFO SARCOMAS http://www.infosarcomes.org

CML France https://www.lmc-france.fr

PATIENTS IN NETWORK http://www.patientsenreseau.fr

SILLC http://www.sillc-asso.org

DEFEAT THE MELANOME http://www.vaincrelemelanome.fr