The courage of Marylou

Photo Jean-François Desgagnés
Marylou Tremblay returned from a trip to Europe with the family, which, for a few days, allowed him to forget about his illness.

Valerie Bidégaré

Sunday, 8 October 2017 21:36

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Sunday, 8 October 2017 21:36

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A young woman in Baie-Comeau, who had to draw a line on the sports competitions due to a rare inflammatory disease, revit, following a Europe cruise offered by children’s Dreams.

The trip has allowed him not only to solidify the family ties, but also to forget the evil that is eating away at her. “For 10 days, I was able to forget the past three years. This is the most beautiful gift, ” acknowledges Marylou Tremblay.

The children’s wish foundation allowed him to “relive” the time for a Europe cruise with his family.

After having visited Greece, Croatia and Italy, especially, they returned to the country on 4 June. “This is the most beautiful thing of my life. You see things that you don reverras perhaps never, then you say to yourself, “I’m going to enjoy it”, ” says Marylou, who has realized how fragile life is.

“I played my role of a big sister for the first time in three years. It was nice to see my family happy, smile and laugh “, is moved.

Smiles, Marylou and her family have sketched very little since 2013 when the life of the young sport, 18-year-old today, has shifted.

His body is covered with bruises, she was tired to miss his workouts and his dance competitions, cross country skiing, track and field, and soccer, in addition to having significant bleeding from the nose.

In the hospital the day of her 15 years

“After this episode, I went to school and I started to cough up blood. There, I told myself that it was really more, ” says the one who went to the hospital to undergo a battery of tests, so that a leukaemia is suspected.

Waiting for other results, Marylou was admitted to hospital on the day of her 15 years.

Biopsies have shown inflammation in the blood vessels of the teenager that threatened to erupt at any time. “They thought I had a disease of the range of the vasculitis. Just put a word on what I had, I had my eyes full of water, ” recalled Marylou waiting for the diagnosis as to the strain of this disease. “We are still in the tests which are in Boston. “

“I didn’t want to go out “

In the meantime, it has taken thirty drugs with multiple side effects, including hair loss and weight gain.

“I took 95 pounds. This is not easy for a girl, especially a teenager, ” says Marylou. “I looked in the mirror and I was so swollen that I couldn’t see the changes on the inside, the evil. I just had black thoughts. I thought to myself, “my God, I am very ugly. Nobody’s going to love me, I will make more friends”. I didn’t want to go out “.

“I’ve long wanted in life and I still want it today. I do not accept it. I don’t know if I will accept it one day, I don’t think so, but I grew up there, ” says Marylou, who has decreased his medication.

It will be able to initiate a remission when it will be weaned. By then, his passion for the sport is transposed to the volunteer and she intends to finish her secondary 5. “I begin to relive, to get a taste of life, yes, I could not find better words. “

What is the vasculitis ?

• Chronic inflammatory disease
• The blood vessel wall is the target of an autoimmune response.
• Symptoms : fever, muscle and joint pain, fatigue, poor circulation, bruising, in particular.
• The diagnosis is very difficult.
• Treatment : cortisone and immunosuppressants, in particular.

Source : CHUS