Lou gehrig’s disease : the result of the Ice Bucket Challenge arrives in Paris

Central Sussex College

Published the 31.07.2017 at 17h44

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Ice Bucket Challengemaladie of charcotParis

The Ice Bucket Challenge was small. The famous challenge organized to support research on lou gehrig’s disease is celebrating today its third anniversary. In order to keep intact the burgeoning interest of the general public towards this heavy pathology, a new formula for the challenge will take place in Paris.

Remember. It was in the summer of 2014. Prior to that, lou gehrig’s disease, also called ALS (amyotrophic lateral sclerosis), did not say anything to anyone. Until a challenge is a little crazy to be launched on the social networks : for those who could not get out the cheque book, the pledge was to spill on the head a bucket of ice and water, in order to raise awareness on the pathology, but also to realize, by metaphor, that the announcement of a diagnosis can be chilling. It was also through this gesture to mimic one of the symptoms of the disease : paralysis of the body.

All to the water !

The challenge was viral. Tens of thousands of people – actors, athletes, politicians, people, and plethora of unknown – ran, wet head, body frozen after being poured over the contents of their ” bucket “. At the end of the summer of 2014, almost 280 million euros had been raised to fund research.

Three years later, it is, therefore, to continue to raise awareness about this disease. After Amsterdam and London, it is the turn of Paris to embark on a new challenge, the little brother of the Ice Bucket Challenge. Point of ice water this time, but a little cold all the same : that of the Bassin de la Villette.

On September 10, the Parisians (and all those who want to) are invited to a race of 1.5 kilometers in the waters of the capital, for the first edition of the ” Paris ALS Swim “. Children can also participate : a course of 300 metres is planned for them.

Through this challenge, it is d’ “to express our solidarity with the patients of ALS, and the researchers who work daily to eradicate this scourge,” says the ARSLA, to the origin of the challenge. In 2015, Amsterdam, 2000 swimmers embarked on the waters of the canals of the city.

Approximately 500 000 people are infected with the disease of Charcot around the world. In France, there are 8000 patients and 100 deaths each year.